Kerala High Court initiates suo motu PIL to include Congenital Adrenal Hyperplasia in group of rare diseases

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The Kerala High Court on Tuesday initiated a suo motu case to include Congenital Adrenal Hyperplasia in the group of rare diseases and to grant financial aid and support to the patients. [Suo Moto v State of Kerala and another].

A division bench of Chief Justice S Manikumar and Justice Shaji P Chaly, issued notice to the State of Kerala, represented by the Chief Secretary and the Principal Secretary to Government, Health and Family Welfare Department.

The matter was taken up by the court suo motu based on a plea moved by the mother of two children, aged 7 and 2, who suffer from congenital adrenal hyperplasia.

The eldest of the two is also 90% autistic. It was claimed that the child is unable to fulfill his physical needs and requires constant care and companionship.

Moreover, it was stated that the child cannot attend school and even hurts himself and his brother.

Therefore, the plea sought aid from the State government.

The Court will take up the suo motu PIL again after a week.

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